Follow up Friday

As mentioned in my previous post, Friday was spent dashing from appointment to appointment along North Broadway.

Jackson's echocardiogram finished up around 10:15 (we don't have the results yet), just in time to dart down the street to KKI for his PT appointment. He has a new therapist there, so it was very much like starting over again. I'm usually more prepared for such things, providing his mildly extensive history via thumb drive or spreadsheet. (Seriously) But Friday I didn't have either with me, so I had to go through it all again verbally.

Once finished with PT, we trotted on back up to the main hospital to pick up a copy of Jack's latest MRI. Ronni (Genetic Neurologist) has suggested we request Dr. Bill Dobyns of Chicago to read it as well. Dr. Dobyns has agreed, and had some intersting input on the unofficial report(quite contrary to Ronni's). So I'll be sending the CD-ROM of images to him (along with a "donation" to his lab - as required by the good doctor).

We were attempting to do Jack's blood draw prior to our next appointment at KKI (Fairmount campus) but due to the unusual nature of the testing to be performed it was taking the phlebotomist quite a lot of time to sort out the coding. So we gave up and went to see Dr. Lipkin. He didn't have anything truly profound to say, although he noted that he was very pleased with Jackson's increase in verbalizations. He also said that he had never seen heterotopia or hypoplasia before, something that was quite astounding to me considering he is known as one of "THE" foremost developmental pediatricians in the country.

Once we finished with Dr. Lipkin, or rather he with us, we trudged back down to the main hospital to complete the blood draw. Luckily, the paperwork and coding had been ironed out, and the draw was quick, though not painless.

Four weeks for the results, although once again no seems to think any of the tests will reveal new information.