RE-FOCUS!

This morning, we a very long and arduous appointment with Jack's Genetic Neurologist, Dr. R. Six months ago we had our first visit with Dr. R and his initial impression was that he was unsure if Jackson truly had any neurological issues. During our visit today Dr. R observed Jackson, his behavior, his movements, and his communication skills. And after some discussion Dr. R confirmed what we have suspected for some time now. It is apparent that Jackson does have some neurological problems. The degree to which these problems will affect his development is unknown. And what the diagnosis is of the collective problems is and will probably remain unknown for quite some time.

During our discussion, Dr. R made a really important point. We have to focus our efforts on supporting Jackson, through his therapy sessions, through interactive and repetetive play. We need to put less emphasis on the actual diagnosis or lack thereof. It is not as important from a treatment standpoint to find a name for his issues as it is to help improve Jackson's day to day functions. And while after the appointment Jackson did have another blood draw in order to further analyze his chromosomes, it is highly uncertain and somewhat irrelevant if that testing will shed some light on the core and/or cause of his neurological issues.

So we go on. Day to day, trying our best to work with Jack to help him grow, strengthen and progress.