Today we had a follow up appointment with a sub sub specialist, Dr. Lefton-Grief, Jackson's Pulmonary Swallow Specialist. While we expected a fairly warm and fuzzy visit, it wasn't quite as joyful as we had hoped. Dr. Lefton-Grief suspects that Jackson is still having issues with liquids, more specifically she thinks he is still aspirating liquids. After spending about an hour with the good doctor, it seems Jackson will be keeping his g-tube through the upcoming winter season. That was a little disappointing, she was however pleased with his progress and encouraged us to keep trying. We will be taking him in for another modified barium swallow study once we can get him to drink something other than water but yet not a dairy product. (Anyone have any ideas?)
Friday, Jackson is scheduled to see another sub sub specialist, Dr. Zee, an Optho Neurologist. I would venture to guess that none of you had ever heard of an Optho Neurologist before. I know I hadn't.
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