I know I've been really bad about my blogging lately so here's the Mother of all updates.
Dr. Zee the Optho Neurologist saw Jackson a few weeks ago. It seems his Ocular Motor Apraxia is slightly improved (Dr. Zee rated it a 15% improvement). And with more time it should improve even more, although it is uncertain if it will ever go away entirely.
Dr. Collins, the Opthamologist, said Jackson is farsighted, although that is fairly common in children and is still within the normal range for his age group. So no glasses, yet. She'll see him back in six months.
Dr. Cohn, the Genetic Neurologist, has ordered more testing for Jack. He is to have an xray of his spine to check for Scoliosis. We will be drawing blood to repeat his acylcarnitine profile, since his liver enzymes were high when last tested. And last, but not least, Jack will undergo an EMG (Electromyography) to test muscle and nerve function. It's not a pleasant procedure, it involves needles and electric current and NO anesthesia. But it will yield some valuable information about Jack's nerve conduction and muscle function. Hopefully it will be worth the unpleasantness.
All of us, with the exception of Jason, have had our Flu vaccines already. Armed and prepared for the winter months which will, with any luck, turn out to be very uneventful.
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