Today we leave for a week long stay at my parents in Kentucky. I was up late last night packing everything but the kitchen sink. Feeding pump, a case of formula, nebulizer, feeding bags, meds, diapers, extension tubes, an extra mickey tube (Jackson's button), syringes of all sizes, extra blankies and a few toys for the car ride - and all of that is just for Jack. The rest of us have become remarkably easy to pack for.
Jackson has an Occupational Therapy appointment this afternoon, after which we'll load up the car and hit the road. Seven to eight hours later we'll unload and unpack. Thursday we come home for a two day stay just to turn around on Saturday and do the whole thing over again, this time on a plane to Colorado.
All the arrangements have been made that can be made. For our journey to Colorado we have printed up directions from the airport to the resort, the resort to the hospital, and the airport to the hospital. With any luck we'll only need the route to the resort. Jackson is still pox free as of this moment and let's hope he stays that way.
During our two day reprieve between trips, Jason will be working both days and Jackson will see the developmental pediatrician at Kennedy Krieger. I don't even know what to expect at this visit. I know there will be some developmental testing, but other than that I suspect it will be the usual round of questions and answers, followed by another diagnosis of "lets-wait-and-see". If time allows, I'll update the blog after the visit.
Here's to vacation! Happy summer everyone.
Jackson has an Occupational Therapy appointment this afternoon, after which we'll load up the car and hit the road. Seven to eight hours later we'll unload and unpack. Thursday we come home for a two day stay just to turn around on Saturday and do the whole thing over again, this time on a plane to Colorado.
All the arrangements have been made that can be made. For our journey to Colorado we have printed up directions from the airport to the resort, the resort to the hospital, and the airport to the hospital. With any luck we'll only need the route to the resort. Jackson is still pox free as of this moment and let's hope he stays that way.
During our two day reprieve between trips, Jason will be working both days and Jackson will see the developmental pediatrician at Kennedy Krieger. I don't even know what to expect at this visit. I know there will be some developmental testing, but other than that I suspect it will be the usual round of questions and answers, followed by another diagnosis of "lets-wait-and-see". If time allows, I'll update the blog after the visit.
Here's to vacation! Happy summer everyone.
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